{"id":11670,"date":"2021-06-21T15:31:04","date_gmt":"2021-06-21T15:31:04","guid":{"rendered":"https:\/\/fibrosisquistica.org\/?page_id=11670"},"modified":"2025-10-28T14:01:48","modified_gmt":"2025-10-28T14:01:48","slug":"registro-de-pacientes","status":"publish","type":"page","link":"https:\/\/fibrosisquistica.org\/en\/registro-de-pacientes\/","title":{"rendered":"Registro de pacientes"},"content":{"rendered":"<div id=\"fws_69ea49e5b5f34\"  data-column-margin=\"default\" data-midnight=\"light\" data-top-percent=\"6%\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: calc(100vw * 0.06); padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"nectar-shape-divider-wrap\" style=\" height:300px;\"  data-height=\"300\" data-front=\"\" data-style=\"straight_section\" data-position=\"bottom\" ><svg class=\"nectar-shape-divider\" aria-hidden=\"true\" fill=\"#e0eae4\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewbox=\"0 0 100 10\" preserveaspectratio=\"none\"> <polygon points=\"104 10, 104 0, 0 0, 0 10\"><\/polygon> <\/svg><\/div><div class=\"row_col_wrap_12 col span_12 light left\">\n\t<div style=\"\" class=\"vc_col-sm-12 wpb_column column_container vc_column_container col padding-5-percent inherit_tablet inherit_phone\" data-using-bg=\"true\" data-overlay-color=\"true\" data-bg-cover=\"true\" data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" ><div class=\"column-image-bg-wrap column-bg-layer viewport-desktop\" data-bg-pos=\"center center\" data-bg-animation=\"none\" data-bg-overlay=\"true\"><div class=\"inner-wrap\"><div class=\"column-image-bg\" style=\" background-image: url('https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2020\/12\/federacion-espan\u0303ola-fibrosis-quistica-geps-fq-impacto-psicologico-covid-19-personas-familiares-espana-scaled.jpg'); \"><\/div><\/div><\/div><div class=\"column-bg-overlay-wrap column-bg-layer\" data-bg-animation=\"none\"><div class=\"column-bg-overlay\"><\/div><div class=\"column-overlay-layer\" style=\"background-color:#000000;  opacity: 0.5; \"><\/div><\/div>\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_69ea49e5b6390\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row vc_row-o-equal-height vc_row-flex vc_row-o-content-middle\"  style=\"padding-top: 4%; \"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column padding-10-percent inherit_tablet inherit_phone\"   data-padding-pos=\"top\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"default\" data-animation-type=\"default\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><div class=\"heading-line\" > <div><h1>Registro de pacientes<\/h1> <\/div> <\/div><\/div><div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 0.5vh; height: 1px; margin-bottom: 0.5vh;\" data-width=\"100%\" data-animate=\"yes\" data-animation-delay=\"\" data-color=\"accent-color\" class=\"divider-border\"><\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class=\"wpb_wrapper\">\n\t\t<p class=\"p1\">con Fibrosis Qu\u00edstica<\/p>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column padding-2-percent inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_69ea49e5b6a2d\"  data-column-margin=\"default\" data-midnight=\"dark\" data-bottom-percent=\"5%\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: calc(100vw * 0.05); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"page-submenu\" data-bg-color=\"#e0eae4\" data-sticky=\"true\" data-alignment=\"center\"><div class=\"full-width-content\" style=\"background-color:#e0eae4; color: #000000;\"><a href=\"#\" class=\"mobile-menu-link\"><i class=\"salient-page-submenu-icon\"><\/i>Menu<\/a><ul style=\"background-color:#e0eae4; color: #000000;\"><li><a  href=\"#FEFQ\">Registro de la FEFQ<\/a><\/li><li><a  href=\"#SEFQ\">Registro de la SEFQ<\/a><\/li><li><a  href=\"#ECFS\">Registro de la ECFS<\/a><\/li><\/ul><\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"FEFQ\"  data-column-margin=\"default\" data-midnight=\"dark\" data-bottom-percent=\"5%\"  class=\"wpb_row vc_row-fluid vc_row full-width-section\"  style=\"padding-top: 0px; padding-bottom: calc(100vw * 0.05); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer using-image\" ><div class=\"row-bg viewport-desktop using-image\"  style=\"background-image: url(https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/01\/Artboard-15.png); background-position: left top; background-repeat: no-repeat; \"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_69ea49e5b7214\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row vc_row-o-equal-height vc_row-flex vc_row-o-content-bottom\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"default\" data-animation-type=\"default\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><div class=\"heading-line\" > <div><h3 style=\"text-align: left\">Registro de la Federaci\u00f3n Espa\u00f1ola de Fibrosis Qu\u00edstica<\/h3> <\/div> <\/div><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<a class=\"nectar-button jumbo regular accent-color  regular-button\"  role=\"button\" style=\"\" target=\"_blank\" href=\"https:\/\/registrofibrosisquistica.es\/\" data-color-override=\"false\" data-hover-color-override=\"false\" data-hover-text-color-override=\"#fff\"><span>Formulario de Registro FEFQ<\/span><\/a><div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 12.5px; height: 2px; margin-bottom: 12.5px;\" data-width=\"100%\" data-animate=\"yes\" data-animation-delay=\"\" data-color=\"accent-color\" class=\"divider-border\"><\/div><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_69ea49e5b772d\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row vc_row-o-equal-height vc_row-flex vc_row-o-content-top\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class=\"wpb_wrapper\">\n\t\t<p><span style=\"font-weight: 400;\">Desde la Federaci\u00f3n Espa\u00f1ola de FQ nos gustar\u00eda solicitar la colaboraci\u00f3n de todas las personas con Fibrosis Qu\u00edstica de Espa\u00f1a para rellenar un formulario web que hemos creado con el fin de elaborar un registro nacional que nos permita conocer mejor la situaci\u00f3n actual de las personas con FQ respecto al seguimiento de la vacunaci\u00f3n contra la COVID-19, as\u00ed como el acceso a los nuevos tratamientos moduladores de la prote\u00edna CFTR y las personas que ser\u00edan susceptibles de recibirlos.<\/span><\/p>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class=\"wpb_wrapper\">\n\t\t<p><span style=\"font-weight: 400;\">Este registro tambi\u00e9n nos dar\u00e1 m\u00e1s datos sobre la situaci\u00f3n social y asociativa del colectivo FQ en otros aspectos relacionados con la enfermedad, como el reconocimiento del Certificado de Calificaci\u00f3n de Discapacidad o la necesidad de un trasplante.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Es un formulario muy breve y r\u00e1pido de rellenar.<\/span> <span style=\"font-weight: 400;\">\u00a1Participando te ayudas t\u00fa y ayudas a todo el colectivo de Fibrosis Qu\u00edstica!<\/span><\/p>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"SEFQ\"  data-column-margin=\"default\" data-midnight=\"dark\" data-top-percent=\"4%\" data-bottom-percent=\"4%\"  class=\"wpb_row vc_row-fluid vc_row vc_row-o-equal-height vc_row-flex vc_row-o-content-middle  right_padding_6pct left_padding_6pct\"  style=\"padding-top: calc(100vw * 0.04); padding-bottom: calc(100vw * 0.04); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"true\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop using-bg-color\"  style=\"background-color: #dae5de; \"><\/div><\/div><div class=\"row-bg-overlay row-bg-layer\" style=\"background-color:#dae5de;  opacity: 0.8; \"><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_69ea49e5b7ca4\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row vc_row-o-equal-height vc_row-flex vc_row-o-content-bottom\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"default\" data-animation-type=\"default\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><div class=\"heading-line\" > <div><h3 style=\"text-align: left\">Registro de la Sociedad Espa\u00f1ola de Fibrosis Qu\u00edstica<\/h3> <\/div> <\/div><\/div>\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class=\"wpb_wrapper\">\n\t\t<p><span style=\"font-weight: 400;\">En 2018 se public\u00f3 el primer Registro Espa\u00f1ol de Pacientes con Fibrosis Qu\u00edstica con datos relativos a 2016, por parte de la Sociedad Espa\u00f1ola de FQ y coordinado por el Dr. Carlos V\u00e1zquez tras muchos a\u00f1os de esfuerzo y dedicaci\u00f3n.<\/span><\/p>\n\t<\/div>\n<\/div>\n\n\n\n\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class=\"wpb_wrapper\">\n\t\t<p><span style=\"font-weight: 400;\">Despu\u00e9s, se han seguido publicando informes con los datos relativos a 2018, 2019, 2020, 2021 y 2022, coordinados por la Dra. M\u00aa Dolores Pastor. Se trata de un registro que cada vez cuenta con m\u00e1s datos, rigurosos y concretos, que han sido proporcionados por distintas unidades de fibrosis qu\u00edstica espa\u00f1olas.<\/span><\/p>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_69ea49e5b816f\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row vc_row-o-equal-height vc_row-flex vc_row-o-content-top\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-4 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"img-with-aniamtion-wrap\" data-max-width=\"100%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"fade-in\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"620\" width=\"1200\" data-animation=\"fade-in\" src=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/03\/logo_fq_SEFQ.png\" alt=\"\" srcset=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/03\/logo_fq_SEFQ.png 1200w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/03\/logo_fq_SEFQ-600x310.png 600w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/03\/logo_fq_SEFQ-300x155.png 300w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/03\/logo_fq_SEFQ-1024x529.png 1024w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/03\/logo_fq_SEFQ-768x397.png 768w\" sizes=\"auto, (max-width: 1200px) 100vw, 1200px\" title=\"\">\n          <\/div>\n        <\/div>\n      <\/div>\n    <\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-8 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div id=\"fws_69ea49e5b8630\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row vc_row-o-equal-height vc_row-flex vc_row-o-content-top\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<a class=\"nectar-button jumbo regular extra-color-3  regular-button\"  role=\"button\" style=\"\" target=\"_blank\" href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/03\/Report2016SpainFinal_.pdf\" data-color-override=\"false\" data-hover-color-override=\"false\" data-hover-text-color-override=\"#fff\"><span>Registro 2016<\/span><\/a><a class=\"nectar-button jumbo regular extra-color-3  regular-button\"  role=\"button\" style=\"\" target=\"_blank\" href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2022\/11\/Report2019-Definitivo.pdf\" data-color-override=\"false\" data-hover-color-override=\"false\" data-hover-text-color-override=\"#fff\"><span>Registro 2019<\/span><\/a><a class=\"nectar-button jumbo regular extra-color-3  regular-button\"  role=\"button\" style=\"\" target=\"_blank\" href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2023\/10\/Registro-FQ-informe-2021.pdf\" data-color-override=\"false\" data-hover-color-override=\"false\" data-hover-text-color-override=\"#fff\"><span>Registro 2021<\/span><\/a>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<a class=\"nectar-button jumbo regular extra-color-3  regular-button\"  role=\"button\" style=\"\" target=\"_blank\" href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/04\/Report2018-definitivo-4.pdf\" data-color-override=\"false\" data-hover-color-override=\"false\" data-hover-text-color-override=\"#fff\"><span>Registro 2018<\/span><\/a><a class=\"nectar-button jumbo regular extra-color-3  regular-button\"  role=\"button\" style=\"\" target=\"_blank\" href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2023\/10\/Registro-FQ-informe-2020.pdf\" data-color-override=\"false\" data-hover-color-override=\"false\" data-hover-text-color-override=\"#fff\"><span>Registro 2020<\/span><\/a><a class=\"nectar-button jumbo regular extra-color-3  regular-button\"  role=\"button\" style=\"\" target=\"_blank\" href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2025\/05\/Registro-FQ-informe-2022_web.pdf\" data-color-override=\"false\" data-hover-color-override=\"false\" data-hover-text-color-override=\"#fff\"><span>Registro 2022<\/span><\/a>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 12.5px; height: 2px; margin-bottom: 12.5px;\" data-width=\"100%\" data-animate=\"yes\" data-animation-delay=\"\" data-color=\"accent-color\" class=\"divider-border\"><\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col padding-3-percent inherit_tablet inherit_phone\"  data-padding-pos=\"top\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_69ea49e5b8ca9\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row vc_row-o-equal-height vc_row-flex vc_row-o-content-top\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"ECFS\"  data-column-margin=\"default\" data-midnight=\"dark\" data-top-percent=\"7%\" data-bottom-percent=\"7%\"  class=\"wpb_row vc_row-fluid vc_row full-width-section vc_row-o-equal-height vc_row-flex vc_row-o-content-middle\"  style=\"padding-top: calc(100vw * 0.07); padding-bottom: calc(100vw * 0.07); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer using-image\" ><div class=\"row-bg viewport-desktop using-image\"  style=\"background-image: url(https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/01\/Artboard-16.png); background-position: left top; background-repeat: no-repeat; \"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_69ea49e5b919b\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row vc_row-o-equal-height vc_row-flex vc_row-o-content-bottom\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"nectar-split-heading\" data-align=\"default\" data-m-align=\"inherit\" data-text-effect=\"default\" data-animation-type=\"default\" data-animation-delay=\"0\" data-animation-offset=\"\" data-m-rm-animation=\"\" data-stagger=\"\" data-custom-font-size=\"false\" ><div class=\"heading-line\" > <div><h3 style=\"text-align: left\">Registro de la Sociedad Europea de Fibrosis Qu\u00edstica<\/h3> <\/div> <\/div><\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_69ea49e5b94eb\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row vc_row-o-equal-height vc_row-flex vc_row-o-content-top\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-4 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"img-with-aniamtion-wrap\" data-max-width=\"100%\" data-max-width-mobile=\"default\" data-shadow=\"none\" data-animation=\"fade-in\" >\n      <div class=\"inner\">\n        <div class=\"hover-wrap\"> \n          <div class=\"hover-wrap-inner\">\n            <img loading=\"lazy\" decoding=\"async\" class=\"img-with-animation skip-lazy\" data-delay=\"0\" height=\"100\" width=\"120\" data-animation=\"fade-in\" src=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/06\/ecfs-logo-dark-blue-transparent-100h_0.png\" alt=\"\" title=\"\">\n          <\/div>\n        <\/div>\n      <\/div>\n    <\/div>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-8 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<a class=\"nectar-button jumbo regular extra-color-1  regular-button\"  role=\"button\" style=\"\" target=\"_blank\" href=\"https:\/\/www.ecfs.eu\/ecfspr#:~:text=The%20European%20Cystic%20Fibrosis%20Society,agreed%20inclusion%20criteria%20and%20definitions\" data-color-override=\"false\" data-hover-color-override=\"false\" data-hover-text-color-override=\"#fff\"><span>Registro europeo<\/span><\/a>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div><div class=\"divider-wrap\" data-alignment=\"default\"><div style=\"margin-top: 12.5px; height: 2px; margin-bottom: 12.5px;\" data-width=\"100%\" data-animate=\"yes\" data-animation-delay=\"\" data-color=\"accent-color\" class=\"divider-border\"><\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col padding-3-percent inherit_tablet inherit_phone\"  data-padding-pos=\"top\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div id=\"fws_69ea49e5b9b2e\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row vc_row-o-equal-height vc_row-flex vc_row-o-content-top\"  style=\"\"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class=\"wpb_wrapper\">\n\t\t<p><span style=\"font-weight: 400;\">El Registro de pacientes de la Sociedad Europea de FQ recopila datos demogr\u00e1ficos y cl\u00ednicos de personas con Fibrosis Qu\u00edstica que dan su consentimiento en Europa, de acuerdo con los criterios de inclusi\u00f3n y las definiciones acordados.\u00a0<\/span><\/p>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-6 wpb_column column_container vc_column_container col child_column no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div class=\"wpb_wrapper\">\n\t\t<p><span style=\"font-weight: 400;\">La base de datos del Registro incluye datos de m\u00e1s de 54.000 personas con FQ de 40 pa\u00edses participantes y datos longitudinales de 2008 a 2023. Es un recurso \u00fanico que refleja la realidad de la FQ en Europa.<\/span><\/p>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t<div id=\"fws_69ea49e5b9fc1\"  data-column-margin=\"default\" data-midnight=\"dark\" data-top-percent=\"4%\" data-bottom-percent=\"4%\"  class=\"wpb_row vc_row-fluid vc_row parallax_section\"  style=\"padding-top: calc(100vw * 0.04); padding-bottom: calc(100vw * 0.04); \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"true\"><div class=\"inner-wrap row-bg-layer using-image\" ><div class=\"row-bg viewport-desktop using-image\" data-parallax-speed=\"fast\" style=\"background-image: url(https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2021\/01\/Artboard-18.png); background-position: center top; background-repeat: no-repeat; \"><\/div><\/div><div class=\"row-bg-overlay row-bg-layer\" style=\"background-color:#dae5de;  opacity: 0.5; \"><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-2 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-8 wpb_column column_container vc_column_container col has-animation padding-3-percent inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"fade-in-from-bottom\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t<div class=\"nectar-highlighted-text\" data-style=\"regular_underline\" data-exp=\"default\" data-underline-thickness=\"2px\" data-using-custom-color=\"true\" data-animation-delay=\"false\" data-color=\"#f2935b\" data-color-gradient=\"\" style=\"\"><h3 align=\"center\">En Espa\u00f1a hay <em>m\u00e1s de 2500<\/em> personas con Fibrosis Qu\u00edstica.<br \/>\n<strong>Tu donaci\u00f3n nos ayuda a mejorar su calidad de vida<\/strong><\/h3>\n<\/div><div id=\"fws_69ea49e5ba2ec\" data-midnight=\"\" data-column-margin=\"default\" class=\"wpb_row vc_row-fluid vc_row inner_row\"  style=\"padding-top: 2%; \"><div class=\"row-bg-wrap\"> <div class=\"row-bg\" ><\/div> <\/div><div class=\"row_col_wrap_12_inner col span_12  left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col child_column centered-text has-animation no-extra-padding inherit_tablet inherit_phone\"   data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"fade-in-from-bottom\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<a class=\"nectar-button jumbo regular accent-color  regular-button\"  role=\"button\" style=\"\"  href=\"\/en\/colabora\/\" data-color-override=\"false\" data-hover-color-override=\"false\" data-hover-text-color-override=\"#fff\"><span>Colabora<\/span><\/a>\n\t\t<\/div> \n\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n\n\t<div  class=\"vc_col-sm-2 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"Registro de pacientes con Fibrosis...","protected":false},"author":107,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-11670","page","type-page","status-publish"],"acf":[],"_links":{"self":[{"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/pages\/11670","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/users\/107"}],"replies":[{"embeddable":true,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/comments?post=11670"}],"version-history":[{"count":39,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/pages\/11670\/revisions"}],"predecessor-version":[{"id":75998,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/pages\/11670\/revisions\/75998"}],"wp:attachment":[{"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/media?parent=11670"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}