{"id":5789,"date":"2019-04-24T07:52:04","date_gmt":"2019-04-24T07:52:04","guid":{"rendered":"https:\/\/fibrosisquistica.org\/?p=5789"},"modified":"2021-04-22T13:22:09","modified_gmt":"2021-04-22T13:22:09","slug":"24-de-abril-4o-miercoles-de-abril-dia-nacional-de-la-fibrosis-quistica","status":"publish","type":"post","link":"https:\/\/fibrosisquistica.org\/en\/24-de-abril-4o-miercoles-de-abril-dia-nacional-de-la-fibrosis-quistica\/","title":{"rendered":"24 de abril (4\u00ba mi\u00e9rcoles de abril) &#8211; D\u00eda Nacional de la Fibrosis Qu\u00edstica"},"content":{"rendered":"<h1 align=\"center\"><\/h1>\n<p>Con motivo del D\u00eda Nacional de la FQ, que\u00a0se celebra hoy 24 de abril (cuarto mi\u00e9rcoles de abril), la Federaci\u00f3n Espa\u00f1ola de Fibrosis Qu\u00edstica (FEFQ) quiere hacer visible el problema en el que se encuentran cientos de personas con Fibrosis Qu\u00edstica en Espa\u00f1a, que podr\u00edan estar tomando unos medicamentos que frenar\u00edan el avance de su enfermedad, pero que no pueden hacerlo por falta de un acuerdo de precio entre el Ministerio de Sanidad y el laboratorio Vertex. Por ello ha escrito una carta a Jeffrey Leiden, presidente y CEO de Vertex Pharmaceuticals, que pod\u00e9is leer <a href=\"https:\/\/fibrosisquistica.org\/en\/la-federacion-escribe-una-carta-abierta-al-laboratorio-vertex-para-que-llegue-a-un-acuerdo-urgente-en-la-financiacion-de-sus-medicamentos\/\" target=\"_blank\" rel=\"noopener noreferrer\">aqu\u00ed<\/a>.<\/p>\n<p>Adem\u00e1s, la FEFQ quiere visibilizar la situaci\u00f3n en que se encuentran las familias con FQ y llenar el cielo con miles de <strong>#PompasporlaFibrosisQu\u00edstica.<\/strong> Animamos a que todo el mundo comparta en las redes sociales sus fotos soplando pompas de jab\u00f3n, como s\u00edmbolo del aire que les falta a las personas con Fibrosis Qu\u00edstica. M\u00e1s informaci\u00f3n, <a href=\"https:\/\/fibrosisquistica.org\/en\/unete-a-soplar-miles-de-pompas-por-el-dia-nacional-de-la-fibrosis-quistica\/\" target=\"_blank\" rel=\"noopener noreferrer\">aqu\u00ed<\/a>.<\/p>\n<p>\u00a1\u00danete a la campa\u00f1a y colabora visibilizando la Fibrosis Qu\u00edstica!<\/p>\n<p><iframe loading=\"lazy\" src=\"https:\/\/www.youtube.com\/embed\/EQqwL00JlGo\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u00bfQuieres saber m\u00e1s sobre la Fibrosis Qu\u00edstica?<\/strong> Echa un vistazo a estas infograf\u00edas:<\/p>\n<p><a href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-1.jpg\" rel=\"attachment wp-att-5791\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5791\" src=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-1-212x300.jpg\" alt=\"Info 1\" width=\"212\" height=\"300\" title=\"\" srcset=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-1-212x300.jpg 212w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-1-600x849.jpg 600w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-1-768x1086.jpg 768w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-1-724x1024.jpg 724w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-1-940x1330.jpg 940w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-1.jpg 1448w\" sizes=\"auto, (max-width: 212px) 100vw, 212px\" \/><\/a>\u00a0 \u00a0 \u00a0<a href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-2.jpg\" rel=\"attachment wp-att-5792\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5792\" src=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-2-212x300.jpg\" alt=\"Info 2\" width=\"212\" height=\"300\" title=\"\" srcset=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-2-212x300.jpg 212w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-2-600x849.jpg 600w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-2-768x1086.jpg 768w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-2-724x1024.jpg 724w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-2-940x1330.jpg 940w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-2.jpg 1448w\" sizes=\"auto, (max-width: 212px) 100vw, 212px\" \/><\/a>\u00a0 \u00a0\u00a0 <a href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-3.jpg\" rel=\"attachment wp-att-5793\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5793\" src=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-3-212x300.jpg\" alt=\"Info 3\" width=\"212\" height=\"300\" title=\"\" srcset=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-3-212x300.jpg 212w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-3-600x849.jpg 600w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-3-768x1086.jpg 768w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-3-724x1024.jpg 724w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-3-940x1330.jpg 940w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-3.jpg 1448w\" sizes=\"auto, (max-width: 212px) 100vw, 212px\" \/><\/a>\u00a0 \u00a0\u00a0 <a href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-4.jpg\" rel=\"attachment wp-att-5795\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5795\" src=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-4-212x300.jpg\" alt=\"Info 4\" width=\"212\" height=\"300\" title=\"\" srcset=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-4-212x300.jpg 212w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-4-600x849.jpg 600w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-4-768x1086.jpg 768w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-4-724x1024.jpg 724w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-4-940x1330.jpg 940w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-4.jpg 1448w\" sizes=\"auto, (max-width: 212px) 100vw, 212px\" \/><\/a>\u00a0 \u00a0\u00a0 <a href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-5.jpg\" rel=\"attachment wp-att-5796\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5796\" src=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-5-212x300.jpg\" alt=\"Info 5\" width=\"212\" height=\"300\" title=\"\" srcset=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-5-212x300.jpg 212w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-5-600x849.jpg 600w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-5-768x1086.jpg 768w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-5-724x1024.jpg 724w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-5-940x1330.jpg 940w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-5.jpg 1448w\" sizes=\"auto, (max-width: 212px) 100vw, 212px\" \/><\/a>\u00a0 \u00a0\u00a0\u00a0<a href=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-6-1.jpg\" rel=\"attachment wp-att-5804\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-5804\" src=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-6-1-212x300.jpg\" alt=\"FIBROSIS_QUISTICA\" width=\"212\" height=\"300\" title=\"\" srcset=\"https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-6-1-212x300.jpg 212w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-6-1-600x848.jpg 600w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-6-1-768x1086.jpg 768w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-6-1-724x1024.jpg 724w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-6-1-940x1329.jpg 940w, https:\/\/fibrosisquistica.org\/wp-content\/uploads\/2019\/04\/Info-6-1-scaled.jpg 1810w\" sizes=\"auto, (max-width: 212px) 100vw, 212px\" \/><\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Con motivo del D\u00eda Nacional&#8230;<\/p>","protected":false},"author":22,"featured_media":10112,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[8,74,77],"tags":[],"class_list":{"0":"post-5789","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-federacion","8":"category-reivindicacion","9":"category-sensibilizacion"},"acf":[],"_links":{"self":[{"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/posts\/5789","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/users\/22"}],"replies":[{"embeddable":true,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/comments?post=5789"}],"version-history":[{"count":1,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/posts\/5789\/revisions"}],"predecessor-version":[{"id":11373,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/posts\/5789\/revisions\/11373"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/media\/10112"}],"wp:attachment":[{"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/media?parent=5789"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/categories?post=5789"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/fibrosisquistica.org\/en\/wp-json\/wp\/v2\/tags?post=5789"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}